ESPU Congress 2018 - Abstract Book

216

CONGRESS OF THE ESPU

S1: FUNCTIONAL VOIDING

DISORDERS (part. 1)

Moderators: Jens Larsson (Sweden), Angela Downer (UK)

ESPU-Nurses Meeting on Thursday 12, April 2018,

09:20–09:50

09:20–09:30

S1-1 (LO)

INFORMATION EVENING FOR PARENTS AND OTHER

ADULTS DEALING WITH CHILDREN WITH FUNCTIONAL

BLADDER AND BOWEL DISORDERS

Anneli SAARIKOSKI

and Riitta KOPPELI

1) Helsinki University Central Hospital, Children's hospital, Helsinki, FINLAND - 2) Pikkujätti lasten ja nuorten

lääkäriasema, Helsinki, FINLAND

PURPOSE

Functional bladder and bowel disorders (BBD) are common in otherwise healthy children. There

is lack of accurate knowledge how to support these children in different settings (home, school,

day-care, healthcare).

The aim of this paper was to evaluate if an open information session is beneficial for parents and

other adults around children with BBD.

MATERIAL AND METHODS

We organised four open information evenings, two hours each, between September 2015 and

February 2017. The participants were adults living or working with children with BBD. The infor-

mation was carried out based on basic life-style advice according to the ICCS definitions. The

participants were encouraged to ask questions and share experiences. At the end of each session

the participants (n=233) were asked to fill short evaluation forms with six statement using scale

4 (totally agree) to 1(totally disagree) and give open feed-back.

RESULTS

Response rate was 69 % (n=161). The participants evaluated the information session beneficial

(mean of 3.7). The given information gave them useful instructions to support the children. The

most important feedback was that there is lack of adequate knowledge concerning BBD both in

primary health-care settings and in day-care organisations. Especially important to the parents was

possibility to share experiences with each other.

CONCLUSIONS

The results underlined the importance of open information events like these to adults dealing with

children with BBD. The results provided encouragement to develop new ways to share information,

for example an information website

and a closed Facebook group for

parents.